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Long Illness

A Practical Guide to Surviving, Healing, and Thriving

Audiobook (Includes supplementary content)
1 of 1 copy available
1 of 1 copy available

From COVID-19 and autoimmune disease to chronic pain and inflammation, this new integrative approach and practical guide from two UCSF doctors is an essential guide to living with long illnesses.

Having a long illness—from autoimmune disease to dysautonomia, long COVID to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to chronic pain or depression—can mean a long struggle to get adequate care. From explaining symptoms over and over again to doctors and family members to making sure you are receiving the correct diagnosis and treatment, having a long illness can be a fulltime job. And it's a hard one.
Drs. Meghan Jobson and Juliet Morgan specialize in treating long illness; from their work on the frontlines with long COVID, they know that all long illnesses shares many of the same hallmarks. Using evidence-based integrative medicine, they have put together a program that legitimizes long illness and validates concerns where other physicians often dismiss them. In Long Illness, you'll find an unparalleled, holistic approach to healing, with valuable information on:

  • The foundations of long illness and what it means for your life
  • How to work with your medical team to get the care you need
  • Common symptoms, such as pain, fatigue, headaches, difficulty breathing, digestive disruption, insomnia, and more
  • A wide range of accessible healing techniques, including cognitive behavioral therapy (CBT), traditional Eastern medicine, mindfulness practices, and emerging therapies
  • Your mental health with long illness and how to manage it
  • Long term solutions
  • Recovery is a process, not always a destination. This book will help you build your recovery tool kit, reclaim your identity, manage your symptoms, and become empowered to get the care team you deserve.

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    • Reviews

      • Publisher's Weekly

        March 20, 2023
        “Recovery is a process, not always a destination,” contend physicians Jobson and Morgan in their comprehensive program for managing a prolonged illness. The authors detail how to build a care team and manage symptoms for a variety of “rheumatologic, autoimmune, neurologic, and inflammatory” conditions; outline the four types of pain doctors consider when planning treatment (nociceptive pain arises from tissue damage, while complaints of pins and needles imply neuropathic pain, or nerve damage); and cover the gamut of possible remedies, including low-tech (deep breathing and meditation), therapeutic (acupuncture, physical therapy), and pharmacological (methadone and tricyclic antidepressants). Chronic fatigue, they note, can be caused by such factors as hormone imbalance or autoimmune dysfunction, and they recommend cognitive behavioral therapy or getting tested for a common genetic mutation that makes it difficult for the body to draw energy from vitamin B. The authors also offer advice on managing one’s medical team and provide a script for what readers might say to practitioners if they’re not feeling heard. Though the chapters on depression and anxiety feel meager, Jobson and Morgan otherwise succeed in addressing the broad scope of possible conditions while offering specific, useful suggestions. Those dealing with long-term illness will be grateful for the practical advice.

      • Library Journal

        April 1, 2023

        This book joins other health-recovery guides directed at people with difficult-to-diagnose disorders often described as chronic. These include fibromyalgia, rheumatoid arthritis, depression, and many other conditions, as well as the baffling set of symptoms now known as long COVID. The authors, both of them physicians, argue that the word "chronic" suggests permanent disease; instead they use the term "long illness," which they believe opens the door to improvement, even in extended illnesses. The authors showcase the many conditions and symptoms that resemble the long-illness paradigm, such as pain, fatigue, respiratory difficulty, brain fog, digestive problems, sleep disorders, depression, anxiety, trauma, and coping issues. The book includes the authors' reviews of body/mind interventions, such as stress management, detox strategies, diets, exercise, and conventional pharmacology. VERDICT This is a welcoming book, though many of its strategies duplicate techniques well described in other health care manuals. It is useful, however, to see how compassionate health management techniques can address these puzzling long conditions and offer encouragement for healing.--Dorian Gossy

        Copyright 2023 Library Journal, LLC Used with permission.

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    • OverDrive Listen audiobook

    Languages

    • English

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