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MOTHERCARE

On Obligation, Love, Death, and Ambivalence

ebook
2 of 2 copies available
2 of 2 copies available
"Masterfully-wrought . . . [A] stunning story of caregiving, with its questions of obligation and ethics and what it means to care for someone who, perhaps, didn’t care for you." —The Boston Globe
From the brilliantly original novelist and cultural critic Lynne Tillman comes MOTHERCARE, an honest and beautifully written account of a sudden, drastically changed relationship to one’s mother, and of the time and labor spent navigating the American healthcare system.

When a mother’s unusual health condition, normal pressure hydrocephalus, renders her entirely dependent on you, your sisters, caregivers, and companions, the unthinkable becomes daily life. In MOTHERCARE, Tillman describes doing what seems impossible: handling her mother as if she were a child and coping with a longtime ambivalence toward her.
In Tillman’s celebrated style and as a “rich noticer of strange things” (Colm Tóibín), she describes, without flinching, the unexpected, heartbreaking, and anxious eleven years of caring for a sick parent.
MOTHERCARE is both a cautionary tale and sympathetic guidance for anyone who suddenly becomes a caregiver. This story may be helpful, informative, consoling, or upsetting, but it never fails to underscore how impossible it is to get the job done completely right.
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    • Library Journal

      March 1, 2022

      Currently president pro tempore of the U.S. Senate, Leahy gives us a sweeping view of U.S. politics as he tells his story as the country's longest-serving senator in The Road Taken (75,000-copy first printing). A leading light in film and television, also featured in four Broadway shows, Lewis (The Mother of Black Hollywood) recounts personal experiences encapsulating the vagaries of modern life while highlighting what she's learned about Walking in My Joy (125,00-copy first printing). In Deer Creek Drive, AWP Award-winning novelist/memoirist Lowry recalls the particularly vicious 1948 murder of society matron Idella Thompson near where she grew up in the solidly Jim Crow Mississippi Delta, with neighbors protesting the conviction of Thompson's daughter even though her claims about a fleeing Black man proved spurious. Proclaiming I'm Glad My Mom Died, actor/director McCurdy relates what it was like to be a child star (iCarly) wrestling with an eating disorder, addiction, and a controlling and aggressively ambitious mother (75,000-copy first printing). In a memoir rejecting the standard resilience trope, Nietfeld chronicles traversing a childhood encompassing a mother who put her on antipsychotics, icy foster care, Adderall addiction, and homelessness to arrive at Harvard, Big Tech, and Acceptance--crucially, of herself. Award-winning critic/novelist Tillman relates a life taken over by Mothercare after her mother was diagnosed with Normal Pressure Hydrocephalus (after several wrong assumptions), leading to seven surgeries, memory loss, and total dependence on her daughters.

      Copyright 2022 Library Journal, LLC Used with permission.

    • Publisher's Weekly

      June 6, 2022
      In this discerning if uneven work, novelist and critic Tillman (Men and Apparitions) reckons with the equivocations and guilt she weathered while caring for her ailing mother at the end of her life. Recalling the 11 years she and her sisters spent tending to their mother (referred to as “Mother” here) after she was diagnosed in 1994 with a rare condition that caused memory loss, Tillman suggests that “keeping her alive was done generously, but not selflessly, and also as a grueling obligation.” As she traces Mother’s decline, Tillman details her frustrations with a medical community unable to properly handle her mother’s unusual case, including an “arrogant neurologist” and a “lunatic” caregiver who’s later fired for being “utterly ineffective.” Though the intellectual rigor and analysis that mark Tillman’s criticism are evident, they often lend a dispassionate distance to her observations, even as intimate details are shared. Two recurring themes lend propulsive force to the book: Mother’s love for an abandoned cat, and a late-in-life declaration to her daughter that “if I had wanted to be, I would have been a better writer than you.” It’s this “unvarnished truth” that gives the work its emotional texture, underscoring the complicated binds that make up families. Despite being something of a mixed bag, Tillman’s frank insights on love and loss are cannily original.

    • Booklist

      July 29, 2022
      In this unvarnished, bracing, at times funny memoir, novelist and critic Tillman (Men and Apparitions, 2018) recounts the 11 years leading up to her mother's death at age 98. Tillman and her two sisters honor their mother's wish to remain in her Manhattan apartment and hire a full-time caregiver. She deftly and candidly weaves together the facts about how too much fluid on her brain let to her mom's memory loss with the conflicting emotions she feels about her. "From the age of six, I had disliked my mother, but I didn't wish her dead." She does recounts how, when her parents were listening to Orson Welles' infamous 1936 radio broadcast, War of the Worlds, her "rational, smart" mom said, "Turn to another station." Tillman considers age and a flawed medical system that has more plastic surgeons than gerontologists. Depressingly, she feels her mom loved herself more than Tillman. Indeed, when Tillman gets a Guggenheim Fellowship six weeks before her mother dies, her mom says, "If I had wanted to be, I would have been a better writer than you."

      COPYRIGHT(2022) Booklist, ALL RIGHTS RESERVED.

    • Kirkus

      Starred review from April 15, 2022
      An extended essay plumbs the effects of aging and illness on patient and caregivers alike. "Mother was a smart, resourceful, attractive, tactless, competitive, and practical person." Novelist and critic Tillman emphasizes these qualities of her mother's to convey the shock she felt when, in 1995, she returned from a trip abroad to find her 86-year-old mother unusually passive and disheveled. After several tests, one doctor offered a diagnosis of normal pressure hydrocephalus, a condition virtually unknown then--and one that remains poorly understood today: "700,000 people in the United States are supposed to have hydrocephalus, but only 20 percent have been correctly diagnosed." Tillman's mother had a shunt implanted to drain excessive fluid from her ventricles. However, though this treatment is common and effective, it isn't perfect; over 10 years, she would receive seven revisions. Tillman never shies away from the difficult realities of her mother's illness nor from the fact that her mother was a harsh and narcissistic person all her life. She painstakingly catalogs the numerous challenges of illness, not only for the patient, but also for those around her, including the frustrations of finding good or even adequate care. Doctors and hospitals could be indifferent or unhelpful, particularly because her mother was elderly, and "the elderly especially are seen as dead weight to the medical industry." Some of the most affecting passages are about caregivers, one of whom the family employed for a decade. Most often women of color and frequently undocumented, these women were crucial to her mother's care and allowed her to maintain some measure of her own freedom, but their role, integral to the family's functioning and yet still outsiders, proved difficult to navigate. Tillman's detailed account will be enlightening to readers who, like her, had no idea how horrible these processes could be until she cared for someone who was sick and comforting to those who see themselves represented in such struggles. An unsparing and heart-wrenching exploration of serious illness and its impact on everyone it touches.

      COPYRIGHT(2022) Kirkus Reviews, ALL RIGHTS RESERVED.

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